Author: lulualissa83
-

Who’s Done For The Week?
Today is Thursday, July 6, 2023 and I’m so ready for the weekend. Because I knew I had an early appointment this morning, my sleep was thrown off and my internal alarm woke me up at 5:30 am. We arrived at Amiri Hospital for my first appointment of the day at 7:45. We headed straight…
-

Friendships and Physio
Today is Wednesday, July 5, 2023…exactly 9 months ago is the day I got COVID and my world turned upside down. It’s crazy how much time has passed since then but it’s also crazy how much has happened in those 9 months! I will always, always repeat this…I’m so grateful to finally be diagnosed and…
-

Just One of Those Days
Today is Tuesday, July 4, 2023 and the title says it all. We all have some good days and some bad days…Today is not a great day for me. Nothing major has happened الحمد لله , I just woke up not feeling that great…physically and emotionally. I was lucky that I didn’t have any early…
-

And We’re Back in Business…
Today is Monday, July 3, 2023 and it’s the first day back to work after the long Eid Al-Adha holiday…so the appointments are back in full swing! But first let’s talk about the past 6 days since my last post. I hope everyone had an enjoyable break, spent with family and loved ones, relaxing and…
-

Gratitude
Today is Tuesday, June 27, 2023 and unfortunately I didn’t sleep well at all last night. From the beginning of my stay in the hospital my sleep was completely thrown off. It was a lot of factors but mainly the high cortisone dosage I was on kept me awake and alert all night long. After…
-

Short Short Week!
Today is Monday, June 26, 2023 and tomorrow starts the 6-day Eid Al-Adha holiday break. I had a few appointments to get through today but it was nothing I couldn’t handle. Although I had a good night’s sleep, something I haven’t had in a while, I still woke up a little fatigued today. It was…
-

PMR and only PMR
Today is Sunday, June 25, 2023 and it’s going to be a very very short week. With the Eid vacation coming up there will be 6 days of holiday where I won’t be having any appointments whatsoever. I honestly don’t know how I feel about that…part of me is excited to take a break from…
-

Today’s Headliner…Nutrition
Today is June 22, 2023 and it’s finally Thursday! I actually fell asleep a little later than usual last night so although it was yet another night of interrupted sleep, my alarm actually woke me up at 6:00 am! It was a strange feeling to wake up to my alarm ringing (this hasn’t happened in…
-

CT Scan
Today is Wednesday, June 21, 2023 and while there were initially three appointments scheduled for the day, I ended up having four! Let’s back track and start with my usual wake up time of around 5:00 am, then my routine of getting dressed and ready for the day. There was no breakfast for me today…
-

Occupational Therapy
Today is Tuesday, June 20, 2023 and my day started at 5:30 am. You know the drill…I had my morning routine of having my breakfast and then getting ready for the start of my day. The difference today was that I really took my time since my first appointment wasn’t until 9:00 am. I left…
-

Derma Day!
Today is Monday, June 19, 2023. The day started at 5:05 am for me with my daily routine of breakfast then step by step I got dressed and ready for the start of my day. From the beginning of my diagnosis I have been seeing various doctors from different departments for my condition. Given that…
-

Back to the grind…
Hello lovely people, how are you doing? I really hope everyone got to enjoy their weekend as much as I enjoyed mine. All I wanted to do was rest, rest, rest and that’s exactly what I did. There were the few exercises and stretches here and there that my PT had asked me to do,…
-

T.G.I.Thursday!
Today is June 15, 2023 and the title says it all…I’m so happy it’s Thursday. This week was my first post-hospital week of follow-ups and it was a very draining one. I guess we were just trying to find a rhythm to it all…being back home, without the kids, getting things taken care of for…
-

Appointments, Appointments, Appointments
Today is Wednesday, June 14, 2023. The only day this week that I don’t have a single appointment to go to…and what a relief that has been! I already gave you a breakdown of what happened on Sunday in terms of all the follow-ups and appointments that day…so let’s dive straight into Monday. But before…
-

And the treatment journey continues. . .
Today, Sunday June 11th, 2023 was the first day of my continued treatment plan as an outpatient. My day started at 5:15am when I woke up and got ready for the many appointments scheduled ahead for the day. But before starting any appointments, I spent the morning savoring every moment I had with my children…
-

Hospital Stay
Today is Saturday, June 10, 2023. I can’t believe it’s been 4 weeks since I was admitted at Amiri Hospital. Time had a different dimension at the hospital for me. Especially with the high doses of steroids that I was on, my sleep was extremely disturbed, if I was even able to get any sleep…
-

My story
Hi, it’s Lulu here. I hope everyone is doing well. I’d like to take 10 minutes of your time and share my recent story with you. I hope you find the time to read it. Please know that this is not to depress you or ask for any pity…in fact I’d like the opposite and…
